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How Ehlers-Danlos Syndrome Affects Heart Health, …
https://ehlersdanlosnews.com/2020/07/14/how-eds-affects-heart-health-function/
Cardiac-Valvular Ehlers-Danlos syndrome - an NCATS …
https://rarediseases.info.nih.gov/diseases/12613/ehlers-danlos-syndrome-cardiac-valvular-type/
Cardiovascular problems – The Ehlers-Danlos Support UK
https://www.ehlers-danlos.org/what-is-eds/information-on-eds/cardiovascular-problems/
Cardiovascular problems. Some rare types of EDS are characterised by cardiovascular problems – the vascular type carries a risk of arterial rupture at a young age, and in cardiac-valvular EDS there are severe progressive problems of the aortic and mitral valves. In the more common hypermobile EDS, problems that can occur are mild dilation of the aortic root (unlikely to …
Breathing problems, racing heart, rushes - Ehlers-Danlos …
https://www.inspire.com/groups/eds-and-hsd/discussion/breathing-problems-racing-heart-rushes/
The Ehlers-Danlos Syndromes and Related Disorders Support Community connects patients, families, friends and caregivers for knowledge, support and inspiration. This community is sponsored by the Ehlers-Danlos Society, an Inspire trusted partner. ... Breathing problems, racing heart, rushes. You are about to report this post for review by an ...
Hypermobile Ehlers-Danlos syndrome | Genetic and Rare …
https://rarediseases.info.nih.gov/diseases/2081/hypermobile-ehlers-danlos-syndrome
Editor’s View: May is Ehlers-Danlos Syndromes Awareness Month
https://www.lvpnews.com/20220511/editors-view-may-is-ehlers-danlos-syndromes-awareness-month/
Ehlers is named after the physicians, Edvard Ehlers and Henri-Alexandre Danlos, who described the syndromes at the turn of the 20th century. Dr. Bruce Alan Ellsweig, the doctor whose patient I became at Lehigh Valley Health Network, asked me if he could bring an intern in to see my Ehlers symptoms during a routine medical checkup.
Ehlers-Danlos syndrome - Symptoms and causes - Mayo Clinic
https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/symptoms-causes/syc-20362125
Vascular Ehlers-Danlos syndrome can weaken your heart's largest artery (aorta), as well as the arteries to other regions of your body. A rupture of any of these larger blood vessels can be fatal. The vascular type can also weaken the walls of the uterus or large intestines — which also may rupture.
Vascular Ehlers-Danlos Syndrome Diagnosed in a Patient …
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6933463/
Ehlers-Danlos syndrome (EDS) is an inherited connective tissue disorder that is caused by defects in collagen, other extracellular matrix proteins, or associated enzymes. As of 2017, the syndrome comprises 13 subtypes with a significant overlap in features. 1 Among them, vascular EDS (vEDS), the most severe subtype in terms of clinical manifestation and mortality, …
Cardiac-Valvular EDS - Ehlers-Danlos News
https://ehlersdanlosnews.com/cardiac-valvular-eds/
Cardiac-valvular Ehlers-Danlos syndrome (cvEDS), a rare type of the disease, is characterized by problems in the heart valves, which accompany the more commonly observed disease symptoms of stretchy skin or overly flexible joints.
Researchers With EDS May Have Found Causative hEDS Mutation
https://ehlersdanlosnews.com/2021/07/19/researchers-with-eds-possibly-discover-causative-heds-mutation/
Africa Studio/Shutterstock. Scientists finally may have discovered a gene mutation that associates with hypermobile Ehlers-Danlos syndrome (hEDS) — and their findings, eagerly awaited by the hEDS patient community, are expected to be written up within the next six months, they said. While known mutations are linked with various EDS subtypes ...
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