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Racing with Sam - The Progeria Research Foundation
https://www.progeriaresearch.org/2005/01/30/racing-with-sam/
“Racing with Sam” - The Open Notebook
https://www.theopennotebook.com/wp-content/uploads/pdf/Henig.2005.NYT%20Magazine.Progeria.pdf
Gordon and her husband, pediatrician Scott Berns, are pushing for gene therapy or bone marrow transplants for children with progeria, knowing that time is running out for Sam, who is seven years old and in second grade and can count himself lucky for not yet having had a stroke.
“Racing with Sam” - From the TON Pitch Database
https://www.theopennotebook.com/pitch/racing-with-sam/
Gordon and her husband, pediatrician Scott Berns, are pushing for gene therapy or bone marrow transplants for children with progeria, knowing that time is running out for Sam, who is seven years old and in second grade and can count himself lucky for not yet having had a …
Racing With Sam - The New York Times
https://www.nytimes.com/2005/01/30/magazine/racing-with-sam.html
Keeping up with Sam Berns is exhausting. He operates at warp speed, cramming three times the normal action into any single hour. It's almost as if Sam knows that he is, quite literally, running out...
Article of the Week Progeria.docx - Article of the Week …
https://www.coursehero.com/file/147309516/Article-of-the-Week-Progeriadocx/
Unformatted text preview: Article of the Week The article “Racing with Sam” was posted by the New York Times on January 30, 2005. It talks about progeria, a genetic condition that causes children to age rapidly. Children diagnosed with progeria generally live only to their mid-teens, and they generally die from heart attacks and strokes.
Opinion | Racing With Sam - The New York Times
https://www.nytimes.com/2005/02/13/opinion/magazine/racing-with-sam-294896.html
Racing With Sam Feb. 13, 2005 Give this article Progeria, another obscure orphan disease with only a couple of dozen victims: why should we care? Well, when it's your child, national statistics are...
Opinion | Racing With Sam - The New York Times
https://www.nytimes.com/2005/02/13/opinion/racing-with-sam-294888.html
Racing With Sam Feb. 13, 2005 Give this article The poignant and beautifully written article about Sam Berns omits one important reference: "When Bad Things Happen to Good People," by Rabbi Harold...
Sam Berns - Wikipedia
https://en.wikipedia.org/wiki/Sam_Berns
Leslie Gordon. Sampson Gordon Berns (October 23, 1996 – January 10, 2014) was an American activist with progeria, an extremely rare and fatal disease that causes the body to age rapidly. Sam helped raise awareness about the disease and he was the subject of the HBO documentary Life According to Sam, which was first screened in January 2013.
A mom’s progeria nonprofit leads to 1st FDA-approved …
https://www.today.com/parents/mom-s-progeria-nonprofit-leads-1st-fda-approved-treatment-t205098
In late 2020, the U.S. Food and Drug Administration approved the use of a drug called lonafarnib in children with Hutchinson-Gilford progeria syndrome. The medication can increase their lifespans ...
Meet the Kids | The Progeria Research Foundation
https://www.progeriaresearch.org/meet-the-kids/
Sam spoke publicly starting at the age of 4 years, shortly after his parents founded The Progeria Research Foundation, including at two TEDx conferences. As of January 2022, his October 2013 talk on his philosophy for a happy life has been viewed by over 91 million people, and daily tweets about how his talk has inspired people continue. Sam ...
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